Thursday, December 12, 2013

Hello! I finally figured out I had to download FireFox, and now I"m able to post updates!

Merry Christmas to all! Please see our most recent update! 

Friday, December 6, 2013

kevin is  doing great! Having some trouble with my computer and posting......w

Friday, August 30, 2013

MRI Results and End of Summer Fun.......see blog for updates!

Tuesday, June 25, 2013

Summer Time!

Summer time!  New update in the "Recent updates" tab!  Thank you for all your prayers and continued support!

Monday, April 22, 2013

We are so grateful that Graffen Integrated Business Systems is hosting an event for Kevin!  They are going to hold their spring Professional Business Mixer at Trattoria Giuseppe in May, with proceeds going towards Kevin! It will be a grand event!
                      (More about this event here: )
    Thank you Graffen IBS! Thank you to all those attending! And an extra big thank you to the generous sponsors of the event:


Thursday, April 18, 2013

Today, April 18th,  is Ependymoma Awareness Day. This is a cancer of the central nervous system. In children, it is most commonly found in the brain, then can possibly "seed" down into the spinal cord. Our Kevin is unique (as always). He has tumors first in his lower, middle, and upper spine, and one that recurred at the tip of the spinal cord near the brain. After diagnosis, Ependymoma has a 55% survival rate. Recurrent Ependymoma has few treatment options. This is why we are in this unique Clinical Trial (which has stopped the growth and spread of his tumors)....and we also keep our eyes on the horizon for more research into this rare disease. Please wear Gray today. Maybe you'll be asked a question about it and you can tell one new person about Ependymoma. Increased Awareness = Increased Funding = Increased Research = a CURE.


Tuesday, April 16, 2013

Please see our most recent updates at the "Blog/Updates" tab .

We are grateful and honored that Graffen Integrated Business Solutions and their sponsors will be hosting an event for Kevin!  This professional Business Mixer/Fundraiser will be a grand event at Trattoria Giuseppe Restaurant in May! Thank you Graffen IBS, your sponsors, and all those businesses attending!

This weekend Komali's Hawaiian Shaved Ice had a fundraiser for Kevin.......Thank you so much to Tim and Lora Gwinn for your generosity, and thank you to everyone who came out to enjoy one of these luscious treats!  Look for their kiosk at the Philadelphia Premium Outlets starting this week!